Nov 10th 2013
Today we woke up early and picked up a tired Jesyca from my parents, and went straight to church. On the way out the door I cut my heel and it hurt like crazy. Well I found out it was bleeding the whole time through chruch and on the way home and it took our own make shift bandage and me putting my leg up to get it to stop bleeding. I didnt realize how bad it was bleeding until I was in the middle of doing the medication containers, which every time I do it, it feels like we have a pharmacy with all the different medications and I went to get up from the bed, and go eat lunch so lunch was interrupted by my bleeding foot and then I finished my medication container, after wakign up from my nap.
While I laid down to keep my leg up I started watching tv and feel asleep. Chris and Jesyca went outside and played soccer for a little bit, and then Chris started laundry, and he started going through the storage unit downstairs and replacing the boxes with the bins that we bought recently. We might be moving in a month or so.
We live in transitional housing on a 2nd floor with about 21 steps upstairs to our apartment. My fibromyalgia has gotten worse and I am even more bed ridden because of these stairs. It has made me feel like I am in a constant flare up. I cant get much relief for long, and I can't help doing the laundry or the dishes. I feel like sometimes I don't contribute to this family because of it, I have a hard time making a meal even.
Chris has been teaching Jesyca to cook and she made for the first time sloppy joes. She loved it. She came home with the old school big league big chew bubble gum, I haven't seen that in years. She unpacked from my moms. Chris and I did get newspapers this weekend, and I am behind on my coupons, and going through my binder.
Good News! I entered into a giveaway for a free weighted blanket and we got it for free....It was God at work I truly believe. The website I will provide a link for facebook and thier website. All I have to do is give a testmonial and I can do that because Jesyca has used one before and it has been night and day difference when were able to use it.
One of the many things I love is Law and Order SVU. I have been taping the past seasons on the DVR and I am almost done with season 9....It has taken a few months, but I have caught up on a lot I didn't know about it.
We had dinner and read with Jesyca, her teacher says we need to work on her comprehension of non fiction books. We almost finished this book about a polar bear name Knut and he was raised in Berlin, Germany . It was a cute story and tomorrow we will read the very end of the book, which is all about polar bears. She is required to read for 20 minutes a day, and we read for 25 minutes tonight. I am so proud of her she loves reading and loves science I couldn't ask for more.
My legs tonight have been sore, more achy. I am hoping starting this week we can start getting to bed early but since I took a nap that will be difficult. I have been trying not to nap so we go to bed at an earlier time. Last but not least Jesyca sung at 2nd Service at North Haven Church as a part of Melody Makers. Deb miller has this natural gift with children, I don't know how she does it every year.
Here are some of the links to the stuff I have talked about
Mosaic Weighted Blankets
Law and order SVU
North Haven Church
North Haven Chruch Melody Makers
Knut
Berlin Germany
Sunday, November 10, 2013
Saturday, November 9, 2013
Another Day in and effects of the Fibromyalgia on my life
Nov 9th, 2013
Today was a good day in some ways and in others not so good. My fibromyalgia has caused my fuse to become very short tempered as my pain is always high. My mom said her temper got better with age, well mine has become better in terms of more volatile with age. I took Town Taxi to Target in West St Paul to pick up mine and Jesyca's medications. I found out that the medication I tried to pick up for Jesyca, the prescription was expired, and that my medication Mobic(Meloxicam) needs a prior authorization from UCARE since they only want me to have 34 pills in 34 days. My prescription is for 60 pills, it helps with the inflamation from the Fibrmyalgia.
I got home and Chris was still in bed but he was up thinking about things. My fibromyalgia has taken it's toll on my relationship with Chris. He fights through the pain to do stuff around the house since I cant do the stuff, and on my good days he knows I will help but lately my good days are about 2 a month. He does all the cooking and cleaning. He loves to cook, I personally never had the creativity and passion and patience that he has for it. His back has been getting worse because my life revolves around the bed. i have to have my legs up otherwise I will get shooting pain all the way down my back and my legs, and today the lower right side of my back has a spot that hurts to the touch. One of the many effects of Fibromyalgia.
We went to the YMCA after we talked for a little bit and what has hurt is Chris and I have fought more as my back has gotten worse, and I feel like our relationship is in a rut because of this. I finally got qualified for Sliver Sneakers through UCARE, so we were wanting to get a YMCA membership. We have talked about marriage and he says that he wants to spend the rest of our lives together, but when we were talking today he said that he was thinking of stuff that he wanted to do or get done by end of 2014, and he didnt say one of them was us getting engaged. That is something I would truly like to see by end of 2014.
He wants to start going back to school, but he wants things to be stable, which is why I have put things off myself with going back to school. He wants to go hunting next year. Today when we were looking on his daughter's website Chelsey Treague he found out she likes hunting and was going with her best friend. It must be in the genes I say, since she loves hunting and fishing just like her dad. He wants to get stuff that costs a lot of money.
Today we stopped by his buddy's house. He meet Chris in the navy. As a result of the Fibromyalgia, and one of our fights, I lashed out and said some things that shouldn't have and because of it, his wife and him want nothing to do with myself. I cant say I blame them, I wasn't very nice, I also wasn't meaning for the stuff to be shown to them, I was lashing out at Chris, and Chris apologized to them, but I have a hard time apologizing when they cant even confront me about it.
I had issues with Chris there because it wasn't quick in and out and I was freezing my but off, so I came up to the house to warm up as they come out for a smoke, and then he got an ear full. from me since I was upset at the target about prescriptions, I was upset at the YMCA lady and then I was getting in more pain and i was mad at him for not saying anything about us getting engaged, but I never told him that, and then I was mad at him for taking to long at his buddy's.
I know I am a hard person to get along with these days. I don't know why he sticks around, I think sometimes it is for jesyca and then there is other times when I don't know why he is with me. He told me that laying in the bed makes his back worse and it is the only way I feel comfortable so to make me happy he grins and bears it.
We went to the YMCA to try and get a membership, and I called the other day, and yesterday was told what to bring, and was quoted 54.50 and then we got there and asked for more and more information which was not told to bring with, and then was quoted at 64.00 I told them to forget it because when you quote me and Chris the same price(we had looked into it another time)....then we get there and now you want to charge it more.
While 10 is not a lot to some it is to us. I havent even gotten new boots and tennis shoes which I need badly, but because I make sure Jesyca is covered first, I tend not to buy stuff I need until I am forced to. It has been like that for 8 years.
The car ride home was quiet and then I took a nap another effect of the medication, always knocking me out. I woke up to dinner already half way done thanks to chris, and I had to return a call to someone, and then I watched a program with him and then took a shower. It hurts so much to stand in the shower but today was the day to change my patch so it is a good day like everyday it is too shower. Sometimes I have the hardest time doing that even because I am already in so much pain and the heat effects the amount that goes into my bloodstream so it tends to make me feel a little uneven on my feet. This time I didnt get that since I was taking the patch off and replacing it with a new patch.
We watched this last week's epsiode of Revenge and are now watching Criminal Minds. I commented that Revenge is like watching a new movie everytime. I would love to know what are some of my audiences favorite shows.
Well I have to get up early to get Jesyca from my mom's before Church. So I am going to call it a night. Anther symptom of Fibromyalgia is the 2nd wind you get at night and become a night owl and that is totally me. That is another draw back I have a hard time going to sleep early because the pain gets worse at night, and my antidepressents make me more awake, so I haave to take sleeping pills to fall asleep. It really sucks when I have to get up with Jesyca early during the week and I just cant seem to do it. I try and try and try to get to bed early but never happens.
Goodnight everyone
Today was a good day in some ways and in others not so good. My fibromyalgia has caused my fuse to become very short tempered as my pain is always high. My mom said her temper got better with age, well mine has become better in terms of more volatile with age. I took Town Taxi to Target in West St Paul to pick up mine and Jesyca's medications. I found out that the medication I tried to pick up for Jesyca, the prescription was expired, and that my medication Mobic(Meloxicam) needs a prior authorization from UCARE since they only want me to have 34 pills in 34 days. My prescription is for 60 pills, it helps with the inflamation from the Fibrmyalgia.
I got home and Chris was still in bed but he was up thinking about things. My fibromyalgia has taken it's toll on my relationship with Chris. He fights through the pain to do stuff around the house since I cant do the stuff, and on my good days he knows I will help but lately my good days are about 2 a month. He does all the cooking and cleaning. He loves to cook, I personally never had the creativity and passion and patience that he has for it. His back has been getting worse because my life revolves around the bed. i have to have my legs up otherwise I will get shooting pain all the way down my back and my legs, and today the lower right side of my back has a spot that hurts to the touch. One of the many effects of Fibromyalgia.
We went to the YMCA after we talked for a little bit and what has hurt is Chris and I have fought more as my back has gotten worse, and I feel like our relationship is in a rut because of this. I finally got qualified for Sliver Sneakers through UCARE, so we were wanting to get a YMCA membership. We have talked about marriage and he says that he wants to spend the rest of our lives together, but when we were talking today he said that he was thinking of stuff that he wanted to do or get done by end of 2014, and he didnt say one of them was us getting engaged. That is something I would truly like to see by end of 2014.
He wants to start going back to school, but he wants things to be stable, which is why I have put things off myself with going back to school. He wants to go hunting next year. Today when we were looking on his daughter's website Chelsey Treague he found out she likes hunting and was going with her best friend. It must be in the genes I say, since she loves hunting and fishing just like her dad. He wants to get stuff that costs a lot of money.
Today we stopped by his buddy's house. He meet Chris in the navy. As a result of the Fibromyalgia, and one of our fights, I lashed out and said some things that shouldn't have and because of it, his wife and him want nothing to do with myself. I cant say I blame them, I wasn't very nice, I also wasn't meaning for the stuff to be shown to them, I was lashing out at Chris, and Chris apologized to them, but I have a hard time apologizing when they cant even confront me about it.
I had issues with Chris there because it wasn't quick in and out and I was freezing my but off, so I came up to the house to warm up as they come out for a smoke, and then he got an ear full. from me since I was upset at the target about prescriptions, I was upset at the YMCA lady and then I was getting in more pain and i was mad at him for not saying anything about us getting engaged, but I never told him that, and then I was mad at him for taking to long at his buddy's.
I know I am a hard person to get along with these days. I don't know why he sticks around, I think sometimes it is for jesyca and then there is other times when I don't know why he is with me. He told me that laying in the bed makes his back worse and it is the only way I feel comfortable so to make me happy he grins and bears it.
We went to the YMCA to try and get a membership, and I called the other day, and yesterday was told what to bring, and was quoted 54.50 and then we got there and asked for more and more information which was not told to bring with, and then was quoted at 64.00 I told them to forget it because when you quote me and Chris the same price(we had looked into it another time)....then we get there and now you want to charge it more.
While 10 is not a lot to some it is to us. I havent even gotten new boots and tennis shoes which I need badly, but because I make sure Jesyca is covered first, I tend not to buy stuff I need until I am forced to. It has been like that for 8 years.
The car ride home was quiet and then I took a nap another effect of the medication, always knocking me out. I woke up to dinner already half way done thanks to chris, and I had to return a call to someone, and then I watched a program with him and then took a shower. It hurts so much to stand in the shower but today was the day to change my patch so it is a good day like everyday it is too shower. Sometimes I have the hardest time doing that even because I am already in so much pain and the heat effects the amount that goes into my bloodstream so it tends to make me feel a little uneven on my feet. This time I didnt get that since I was taking the patch off and replacing it with a new patch.
We watched this last week's epsiode of Revenge and are now watching Criminal Minds. I commented that Revenge is like watching a new movie everytime. I would love to know what are some of my audiences favorite shows.
Well I have to get up early to get Jesyca from my mom's before Church. So I am going to call it a night. Anther symptom of Fibromyalgia is the 2nd wind you get at night and become a night owl and that is totally me. That is another draw back I have a hard time going to sleep early because the pain gets worse at night, and my antidepressents make me more awake, so I haave to take sleeping pills to fall asleep. It really sucks when I have to get up with Jesyca early during the week and I just cant seem to do it. I try and try and try to get to bed early but never happens.
Goodnight everyone
Friday, November 8, 2013
Fibromyalgia and the Effects on anything or everything
Fibromyalgia
November 8th 2013
Today is the first day of my new blog. I will be posting how my Fibromyalgia has effected my family, my life and everyone around me. The first thing is I am no longer working as of Oct 12 2012. It got to the point where I could not put weight on my right leg and since then things have gone down hill. This disease has caused my credit to go down because I cant work, my medications expenses were through the roof until I was able to get on government funded insurance.
Today I woke up early around 8am and I have a 7 year old daughter named Jesyca. She is with my parents today since there is no school. Chris my boyfriend and I have lived together for 2 almost 3 years. He is a disabled Navy Veteran. Around 11am I started getting a headache and sleepy so Chris went to fleet farm without me, and I took a nap and felt better.
We live in transitional housing. I cant stand more than 15 minutes at time, or walk around for more than 15-30 minutes at the most. I am still trying to pay the bills from when I was working and had insurance with copay's and a $1000 deductible. I have almost paid off MN Mental health where I go to weekly counseling sessions, we will be done with that by the end of the year. I am in the process of working on getting RS Medical paid for since I owe them for my RS-LB Low Back Conductive Garment and also my RS-4i 4 Channel Sequential Simulator. I finally had the courage to call them about this bill so I can get my RS 4i 4 Channel Sequential Simulator working again.
I am waiting on social security Disability. I have been denied twice, but I have been certified disabled by the State Medical Review Team of MN. I am waiting for my hearing for SSDI. I have major depression and generalized anxiety disorder as well.
My daughter has ADHD, Disruptive Behavior Disorder, along with Dysthmic Disorder which is low grade depression. I have battled with depression since I was a teenager, but it has gotten worse with the Fibormyalgia.
I am in to extreme couponing and genealogy, along with movies and many other things. This blog is to help us hopefully gain some income and also to educate others on how fibromyalgia effects people and those around us. This will cover a lot. I hope I can turn this into a must read blog.
November 8th 2013
Today is the first day of my new blog. I will be posting how my Fibromyalgia has effected my family, my life and everyone around me. The first thing is I am no longer working as of Oct 12 2012. It got to the point where I could not put weight on my right leg and since then things have gone down hill. This disease has caused my credit to go down because I cant work, my medications expenses were through the roof until I was able to get on government funded insurance.
Today I woke up early around 8am and I have a 7 year old daughter named Jesyca. She is with my parents today since there is no school. Chris my boyfriend and I have lived together for 2 almost 3 years. He is a disabled Navy Veteran. Around 11am I started getting a headache and sleepy so Chris went to fleet farm without me, and I took a nap and felt better.
We live in transitional housing. I cant stand more than 15 minutes at time, or walk around for more than 15-30 minutes at the most. I am still trying to pay the bills from when I was working and had insurance with copay's and a $1000 deductible. I have almost paid off MN Mental health where I go to weekly counseling sessions, we will be done with that by the end of the year. I am in the process of working on getting RS Medical paid for since I owe them for my RS-LB Low Back Conductive Garment and also my RS-4i 4 Channel Sequential Simulator. I finally had the courage to call them about this bill so I can get my RS 4i 4 Channel Sequential Simulator working again.
I am waiting on social security Disability. I have been denied twice, but I have been certified disabled by the State Medical Review Team of MN. I am waiting for my hearing for SSDI. I have major depression and generalized anxiety disorder as well.
My daughter has ADHD, Disruptive Behavior Disorder, along with Dysthmic Disorder which is low grade depression. I have battled with depression since I was a teenager, but it has gotten worse with the Fibormyalgia.
I am in to extreme couponing and genealogy, along with movies and many other things. This blog is to help us hopefully gain some income and also to educate others on how fibromyalgia effects people and those around us. This will cover a lot. I hope I can turn this into a must read blog.
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